tag:blogger.com,1999:blog-1106278182709610981.post8359961795401648388..comments2014-11-03T04:23:50.641-08:00Comments on Ultra running, life and cancer: First blood drawAnonymoushttp://www.blogger.com/profile/11418664844847195753noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-1106278182709610981.post-55880748293104284492014-01-10T11:26:52.288-08:002014-01-10T11:26:52.288-08:00Aw, Mary, I really do think of you and your husban...Aw, Mary, I really do think of you and your husband often. I know this has to be so very hard for you to care for your husband, and see him so sick. Caregivers and family are not given nearly enough attention. I know I have asked many people to check in on my husband and kids. I worry more about them than I do about myself. I hope you have a lot of support close by to hug you, talk to you and give you a break. Anonymoushttps://www.blogger.com/profile/11418664844847195753noreply@blogger.comtag:blogger.com,1999:blog-1106278182709610981.post-59758613732448019552014-01-10T11:17:52.957-08:002014-01-10T11:17:52.957-08:00Hi Tonia:
just getting caught up with your blog an...Hi Tonia:<br />just getting caught up with your blog and especially about how saying "tI am sorry ,hat really sucks" is better than saying nothing. You know I am sorry and it really sucks that you have pancreatic cancer - and I would say it in person if I could. But I am at home with my terminally ill husband who is now on hospice - and that sucks as well. We have no idea how much longer he has - but he will not get well - he will only decline as there is no cure for his idiopathic pulmonary fibrosis - and no treatment either - just comfort care. We have the hospice nurse who turns up once a week - I want to call her the "bowel" nurse as she always inquires about his bowels! As a friend of mine said - well it gives her something to ask about other than - on a scale of 0-10 how is your breathing today! <br />He has lost a great deal of weight but put back on quite a bit when he was first diagnosed last spring and put on a mega dose of prednisone. That stuff makes you want to move into the refrigerator and eat everything. In August he changed doctors to go to a center of excellence for his illness and the new doctor took him off the prednisone saying it does nothing for his lungs and it can lead to many other problems. After that he had no appetite and started losing weight again. <br />Thanks to hospice he is now on marinol - a drug given to cancer patients who have trouble eating. So far it works -and not doubt something will be offered if you start to lose weight and lose your appetite. It is important to keep up your weight and your strength - as like my husband - you do not need to lose weight. I will be thinking about you every day - and indeed it sucks - and I am as sorry as hell.Maryhttps://www.blogger.com/profile/04408136850672575656noreply@blogger.com